Alzheimer’s advocates from every corner of North Carolina have helped drive meaningful progress on both state and federal policy fronts. Their dedication has strengthened legislative momentum and expanded access to critical resources for individuals living with Alzheimer’s and other dementias. From the AIM Advocacy Forum in Washington, D.C., our community has been hard at work. Below is a snapshot of the Alzheimer’s Association’s recent advocacy efforts, which are shaping public policy at both the state and federal levels.
State:
In May, House Bill 567 passed through the North Carolina House of Representatives, a significant step in ensuring coverage for biomarker testing. The bill is now in the Senate Rules and Operations Committee. We will continue advocating for this bill to ensure access to biomarker testing for dementia diagnosis. Take action by sending a message to your Senator about the importance of biomarker testing.
Advocates have played a crucial role in advancing House Bill 567 through the North Carolina General Assembly. Ahead of a vote on the House floor, advocates sent over 100 messages and made over 50 calls to legislators to urge them to support access to biomarker testing. On May 6th, we held a Mini ALZ Advocacy Day that helped ensure the bill would move out of the Rules Committee. Thank you to every advocate who used your voice!
Following a productive meeting with Governor Stein’s office, we were grateful to see the proclamation from Gov. Stein declaring June as Alzheimer’s and Brain Awareness Month in North Carolina. We appreciate that North Carolina is recognizing the importance of raising awareness about Alzheimer’s and brain health. Click here to read the proclamation.
Federal:
Last week, selected delegates from across North Carolina traveled to Washington, D.C., to participate in the 2025 Alzheimer’s Impact Movement Advocacy Forum. These dedicated individuals joined more than 1,100 advocates gathered in Washington, D.C. to speak directly with members of Congress about advancing critical federal priorities in the fight against Alzheimer’s.
Throughout the week, advocates urged lawmakers to support $113 million in Alzheimer’s and dementia research funding at the NIH, $35 million for the continued implementation of the BOLD Infrastructure for Alzheimer’s Act, and introduced a brand new bipartisan bill, the Alzheimer’s Screening and Prevention (ASAP) Act. They also called for continued support of the Alzheimer’s Accountability and Investment in Diverse Alzheimer’s Providers to Transform (AADAPT) Act.
The bipartisan ASAP Act would authorize the Secretary of Health and Human Services to approve Medicare coverage for blood-based dementia screening tests when appropriate. This legislation aims to accelerate access to early detection while preserving an evidence-based approach to coverage decisions through the Centers for Medicare & Medicaid Services.
The AADAPT Act seeks to strengthen the dementia care workforce by expanding access to specialized training for primary care providers. Through dedicated grants, this legislation would support the growth of dementia-focused Project ECHO programs—virtual, case-based learning networks that help frontline providers better detect, diagnose, and manage Alzheimer’s and other dementias.
Read more on all the highlights from the 2025 Advocacy Forum.
We are deeply grateful to our incredible volunteer advocates whose dedication to advancing bipartisan Alzheimer’s policies continues to drive real change, both here in North Carolina and across the country.
Alzheimer’s remains one of the most urgent public health challenges of our time. That’s why we continue to push for policies that boost research funding, improve care, and support all those impacted by the disease. Thanks to our volunteers, we’ve made meaningful progress—but the work isn’t done yet.
Interested in joining the movement? Learn how you can take action at the state or federal level by visiting alzimpact.org/volunteer.
Alzheimer's Association North Carolina Blog 